Do 15.09.2022 19:07:41 CEST by BrunO

ME/CFS/SEID

This condition has three names, but still no therapy: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome or Systemic Exertion Intolerance Disease. It also seems to be one of the long term COVID effects.


Sophia and M.E. (Sophia Mirza)


CFIDS/ME Patient Memorial List

The National CFIDS Foundation is compiling this list of people with CFIDS/ME that have died. In doing so, we hope to make people (especially those in the medical community, media and goverment) more fully aware of the seriousness of CFIDS/ME.


CDC - XMRV Home - XMRV


The Checkup - New evidence that virus may cause chronic fatigue

A well-respected team of scientists released long-awaited new evidence Monday that a virus may be playing a role in chronic fatigue syndrome.


In Debate Over Chronic Fatigue, Patients Clash With Scientists - WSJ.com

Patients say scientific community hasn't worked hard enough to find cause of the controversial syndrome; Scientists say some patient advocacy slows research


Brain Fog in Chronic Fatigue Syndrome and Fibromyalgia

Dr. Teitelbaum reports on a study confirming brain fog is independent of depression in chronic fatigue syndrome - while suggesting treatments to overcome this troublesome symptom.


Lyme bacteria found to hide in lymph nodes while US state mandates long-term antibiotics for chronic Lyme

A new study shows that the bacteria responsible for Lyme disease takes cover in lymph nodes to evade immune cells. Meanwhile, the US state of New Hampshire has passed a law allowing doctors to treat chronic Lyme disease with long-term antibiotic therapy.


GcMAF as Treatment for Chronic Fatigue Syndrome, Myalgic Encephalomyelitis and Related Conditions

GcMAF is a glycoprotein which binds to the VDR on the surface of macrophages, stimulating their activity. It is proposed as a treatment for chronic fatigue syndrome, fibromyalgia, Lyme disease and other immune and infectious illnesses.


One of the World’s Leading Chronic Fatigue Syndrome Researchers Joins NSU

Dr. Nancy Klimas plans to conduct innovative research and make new discoveries at Nova Southeastern University’s medical school.


ME/CFS Buzz (March 19th) – the Gut, the Brain, the Immune System and more | Phoenix Rising

RESEARCH A Biological Cause of 'Poor Stress Management' Found in ME/CFS? Brain Behav Immun. 2012 Mar 6. Stress management skills, neuroimmune processes


Adrenal Fatigue: A Possible Element of ME/CFS? | Phoenix Rising

By Jody Smith ME/CFS is not the only condition that the medical community can't seem to reach a consensus about. Adrenal fatigue is another topic that raises


Comparison of adaptive pacing therapy, cognitive beha... [Lancet. 2011] - PubMed - NCBI

PubMed comprises more than 22 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.


DSM-5 criteria useless in fibromyalgia: experts | Rheumatology Update

Virtually all fibromyalgia patients would be classified as having a mental disease under the DSM-5’s new criteria for somatic symptom disorder, a study confirms.


Advocates Fight for Justin Pelletier, Teen Held by State in Psych Ward - ABC News

The case of Justina Pelletier highlights a growing concern among those with rare diseases and autoimmune disorders that physical symptoms that cannot be explained will be dismissed by doctors as psychosomatic.


Fibromyalgia: Proof of Physical Origins Vs. Two Danish Psychiatrists

Breaking News, Information, Opinion, Entertainment and Health News


http://www. iacfsme.org/Portals/0/PDF/ PrimerFinal3.pdf •


PLOS ONE: Mitochondrial Dysfunction in Gulf War Illness Revealed by 31Phosphorus Magnetic Resonance Spectroscopy: A Case-Control Study

PLOS ONE: an inclusive, peer-reviewed, open-access resource from the PUBLIC LIBRARY OF SCIENCE. Reports of well-performed scientific studies from all disciplines freely available to the whole world.


Lessons from ME/CFS: Finding Meaning in the Suffering

Andrew Gladman muses upon what lessons he has taken from two years of ME/CFS. If you’re aware of my previous articles here at Phoenix Rising  then it’s pretty clear that I don’t generally spend my time musing upon the philosophy [•]


Woman overcomes 17 years of fibromyalgia pain with raw food diet - NaturalNews.com

Woman overcomes 17 years of fibromyalgia pain with raw food diet


Justina Pelletier receives warm welcome home in Connecticut - Metro - The Boston Globe

When Justina Pelletier arrived home early Wednesday afternoon in the passenger seat of her mother’s sport utility vehicle, SUV, her father, Lou, made a cradle with his arms and carried her through the front yard. The 16-year-old girl with the shiny sunglasses and a bow in her hair cannot walk on her own anymore. But on Wednesday, for her family, crossing the threshold of her house in any fashion was a big enough step.


Novel Disease Paradigm Produces Explanations for a Whole Group of Illnesses


http://youtu.be/Dk3e8IWj7M0

Karina Hansen and ME (Myalgic Encephalomyelitis)


ME Foreningen - ME Association, Denmark - Farum, Denmark - Gemeinnützige Organisation | Facebook

ME Foreningen - ME Association, Denmark, Farum, Denmark. 624 „Gefällt mir“-Angaben · 89 Personen sprechen darüber · 2 waren hier. ME Foreningen er en...


Mercy killing mother cleared of murder after helping seriously ill daughter die | UK news | The Guardian

'Why did this come to court?' judge asks as jury clear Kay Gilderdale in two hours


False allegations of child abuse


Intestinal staphylococcal small colony variants: a cause of medically unexplained physical symptoms? | Berstad | Microbial Ecology in Health and Disease

Intestinal staphylococcal small colony variants: a cause of medically unexplained physical symptoms?


ME/CFS aktuell


‘The debilitating truth about Chronic Fatigue Syndrome’ | International Business Times | 3 December 2014 | ME Association


Chronicle: The ME sufferers deserve serious research - Google Docs


The cognitive-behavioural model of illness for chronic fatigue syndrome and myalgic encephalomyelitis is not supported by the outcomes of the PACE trial. | The BMJ


Eye health could help diagnose people with chronic fatigue syndrome - Medical News Today

Chronic fatigue syndrome (CFS) is well known for causing exhaustion. It's also linked to a wide range of other symptoms such as pain, poor sleep and trouble concentrating.


The Neuro-Immune Pathophysiology of Central and Peripheral Fatigue ... - PubMed - NCBI

Mol Neurobiol. 2015 Jan 20. [Epub ahead of print]


Attenuation of autoimmune responses to oxidative specific epitopes,... - PubMed - NCBI

Neuro Endocrinol Lett. 2014 Dec 24;35(7):577-585. [Epub ahead of print]


Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness - Institute of Medicine


New Name, New Criteria for Chronic Fatigue Syndrome?

U.S.-appointed panel says illness is 'legitimate,' should be called Systemic Exertion Intolerance Disease


ME/CFS Clinicians' Guide (PDF)


Taylor & Francis Online :: Chronic fatigue syndrome and myalgic encephalomyelitis: towards an empirical case definition - Health Psychology and Behavioral Medicine - Volume 3, Issue 1


Onward Through the Fog: The IOM Report: The Good, The Bad, and the Absolutely Hideous


Scientists discover robust evidence that chronic fatigue syndrome is a biological illness | EurekAlert! Science News

Researchers at the Center for Infection and Immunity at Columbia University's Mailman School of Public Health identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as myalgic encephalomyelitis or systemic exertion intolerance disease. The findings could help improve diagnosis and identify treatment options for the disabling disorder, in which symptoms range from extreme fatigue and difficulty concentrating to headaches and muscle pain.


Mady Hornig on new CFS/ME findings - YouTube

Mady Hornig, MD, Associate Professor of Epidemiology and Director of Translational Research at the Center for Infection and Immunity discusses the impact tha...


Distinct plasma immune signatures in ME/CFS are present early in the course of illness | Science Advances - Significant research. Global impact.


ME/CFS/SEID: It goes by many aliases, but its blood-chemistry signature is a giveaway | Scope Blog

It's the disease that dare not speak its name without tripping over one of its other names. Call it what you will - chronic fatigue syndrome (CFS), myalgic


Twenty Years and Counting: HHS to IOM: New Clinical Diagnostic Criteria for ME/CFS Not Necessary


03 » Study shows why exercise magnifies exhaustion for chronic fatigue syndrome patients » University of Florida


Harms associated with CBT and GET


A review on cognitive behavorial therapy (CBT) and graded exercise ... - PubMed - NCBI

Neuro Endocrinol Lett. 2009;30(3):284-99. Review


Fatigue sensation following peripheral viral infection is triggered by neuroinflammation: who will answer these questions? Yamato M, Kataoka Y - Neural Regen Res

Neural Regen Res, Official publication of Publishing House of Neural Regeneration Research China Association of Rehabilitation Medicine,China


The Role of Antiviral Therapy in Chronic Fatigue Treatment

Growing evidence boosts support for antiviral therapy in treating chronic fatigue syndrome.


Central pathways causing fatigue in neuro-inflammatory and autoimmune illnesses


Xenobiotic sensor- and metabolism-related gene variants in environmental sensitivity-related illnesses: a survey on the Italian population. - PubMed - NCBI

Oxid Med Cell Longev. 2013;2013:831969. doi: 10.1155/2013/831969. Epub 2013 Jul 7. Research Support, Non-U.S. Gov't


Chardale's Curious Journey: ME/CFIDS Scam of the day: Call BS on the lazy A$$ name callers.


Construct validity and clinical utility of current research criteria of DSM-5 Somatic Symptom Disorder diagnosis in patients with fibromyalgia syndrome


Onward Through the Fog: Immune Activation, Chronic Inflammation and Mitochondrial Dysfunction in Autoimmune Disease and ME/CFS


Role of Polymorphisms of Inducible Nitric Oxide Synthase and Endothelial Nitric Oxide Synthase in Idiopathic Environmental Intolerances


BMC Medicine | Full text | The many roads to mitochondrial dysfunction in neuroimmune and neuropsychiatric disorders

Mitochondrial dysfunction and defects in oxidative metabolism are a characteristic feature of many chronic illnesses not currently classified as mitochondrial diseases. Examples of such illnesses include bipolar disorder, multiple sclerosis, Parkinson’s disease, schizophrenia, depression, autism, and chronic fatigue syndrome.


Comment on ICD-11 Beta platform re BDD, BSS, BDS


The long wait for a breakthrough in chronic fatigue syndrome | The BMJ


'ASIA' - autoimmune/inflammatory syndrome induced by adjuvants. - PubMed - NCBI

J Autoimmun. 2011 Feb;36(1):4-8. doi: 10.1016/j.jaut.2010.07.003. Epub 2010 Aug 13. Review


The Last Word On Nothing | Dear Dr. Collins: I’m Disabled. Can the N.I.H. Spare a Few Dimes?


False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME)


Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome - Journal of Psychosomatic Research


TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study

David Tuller’s examination of the PACE trial of chronic fatigue syndrome identified several major flaws.


NIH Says It Will Invest In Researching Chronic Fatigue Syndrome : Shots - Health News : NPR

The National Institutes of Health has promised to put more money into research on an illness that many people feel has been dissed by the medical establishment.


Chronic fatigue PACE trial is flawed, should be reanalyzed.

Last month, a team of researchers released their latest study on chronic fatigue syndrome. Psychotherapy and a gradual increase in exercise, the researcher


Myalgic encephalomyelitis, chronic fatigue syndrome: An infectious disease


The Last Great Medical Cover Up


A chronic illness characterized by fatigue, neurologic and immunologic disorders, and active human herpesvirus type 6 infection. - PubMed - NCBI

Ann Intern Med. 1992 Jan 15;116(2):103-13. Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, P.H.S.


Mitochondrial DNA variants correlate with symptoms in myalgic encephalomyelitis/chronic fatigue syndrome | Journal of Translational Medicine | Full Text


Plasma and cerebrospinal fluid monoamine metabolism in patients with chronic fatigue syndrome: preliminary findings. - PubMed - NCBI

Biol Psychiatry. 1992 Dec 15;32(12):1065-77. Research Support, U.S. Gov't, P.H.S.


Effects of mild exercise on cytokines and cerebral blood flow in chronic fatigue syndrome patients.


Detection of intracranial abnormalities in patients with chronic fatigue syndrome: comparison of MR imaging and SPECT. - PubMed - NCBI

AJR Am J Roentgenol. 1994 Apr;162(4):935-41. Comparative Study; Research Support, U.S. Gov't, P.H.S.


The ‘all in the mind’ myth of myalgic encephalomyelitis/chronic fatigue syndrome | Nursing in Practice

Health professionals should be made aware that ME/CFS is not a psychological illness and in order to improve patient care, nurses need to better understand this illness and its impact on patients.


MEA research assistant Sophie Loup discusses the latest major microbiome study | 1 July 2016 | ME Association


TWiV 397: Trial by Error | This Week in Virology

Vincent speaks with David Tuller about flaws in the U.K's $8 million PACE trial for chronic fatigue syndrome, and efforts to have the trial data released.


CDC - The 1994 Case Definition - Chronic Fatigue Syndrome (CFS)


QMUL releases the PACE data | #MEAction


Postexertion 'Crash,' not Fatigue per se, Marks Syndrome

New research demonstrates numerous biological abnormalities accompanying and after even minimal exertion among patients with chronic fatigue syndrome, also known as myalgic encephalomyelitis.


Immune-Modulating Agents Eyed for 'Chronic Fatigue Syndrome'

Two Norwegian oncologists are investigating the use of rituximab and other immune-modulating agents to treat the controversial condition, while also delving into its energy-depleting cause.


'On bad days the slightest move can cause anguish. I can't speak and I can't concentrate on anything'


Queensland Scientists Make Chronic Fatigue Syndrome Research Breakthrough

The condition has been linked to abnormal immune system cells.


Calcium mobilisation in natural killer cells from Chronic fatigue syndrome/Myalgic encephalomyelitis patients is associated with transient receptor potential melastatin 3 ion channels

Calcium mobilisation in natural killer cells from Chronic fatigue syndrome/Myalgic encephalomyelitis patients is associated with transient receptor potential melastatin 3 ion channels on ResearchGate, the professional network for scientists.


Elevated Energy Production in Chronic Fatigue Syndrome Patients


Vaccine-Related Chronic Fatigue Syndrome In An Individual Demonstrating Aluminium Overload -- ScienceDaily

A team of scientists have investigated a case of vaccine-associated chronic fatigue syndrome (CFS) and macrophagic myofasciitis in an individual demonstrating aluminum overload.


Start — Deutsche Gesellschaft für ME/CFS

Mehr erfahren über die Myalgische Enzephalomyelitis bzw. das Chronic Fatigue Syndrom und die Arbeit der Deutschen Gesellschaft für ME/CFS


Cognitive behaviour therapy and objective assessments in chronic fatigue syndromeJournal of Health Psychology - Graham McPhee, 2017

Most evaluations of cognitive behavioural therapy to treat people with chronic fatigue syndrome/myalgic encephalomyelitis rely exclusively on subjective self-re


Early Results Suggest Two Radically Different Immune Subsets Present in Chronic Fatigue Syndrome (ME/CFS) - Health Rising


Special issue on the PACE TrialJournal of Health Psychology - David F Marks, 2017

We are proud that this issue marks a special contribution by the Journal of Health Psychology to the literature concerning interventions to manage adaptation to...


MYALGIC ENCEPHALOMYELITIS / CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA FINDINGS FROM THE 2014 CANADIAN COMMUNITY HEALTH SURVEY (PDF link)

The following statistics on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia are compiled from the 2014 Canadian Community Health Survey. Information on 17 other chronic conditions as well as the total Canadian Population is also shown.


Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer | Pediatrics

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease that affects children and adolescents as well as adults. The etiology has not been established. While many pediatricians and other healthcare providers are aware of ME/CFS, they often lack essential knowledge that is necessary for diagnosis and treatment. Many young patients experience symptoms for years before receiving a diagnosis. This Primer, written by the International Writing Group for Pediatric ME/CFS provides information necessary to understand, diagnose, and man-age the symptoms of ME/CFS in children and adolescents. ME/CFS is characterized by overwhelming fatigue with a substantial loss of physical and mental stamina. Cardinal features are malaise and a worsening of symptoms following minimal physical or mental exertion. These post-exertional symptoms can persist for hours, days, or weeks and are not relieved by rest or sleep. Other symptoms include cognitive problems, unrefreshing or disturbed sleep, generalized or localized pain, light-headedness and additional symptoms in multiple organ systems. While some young patients can attend school, on a full or part-time basis, many others are wheelchair dependent, housebound, or bedbound. Prevalence estimates for pediatric ME/CFS vary from 0.1%-0.5%. Because there is no diagnostic test for ME/CFS, diagnosis is purely clinical, based on the history and the exclusion of other fatiguing illnesses by physical examination and medical testing...


What Should I Say When Someone Recommends Exercise? – How to Get On

Why Do Some People Think Exercise is Dangerous for People with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome?


Cellular bioenergetics is impaired in patients with chronic fatigue syndrome

Chronic fatigue syndrome (CFS) is a highly debilitating disease of unknown aetiology. Abnormalities in bioenergetic function have been cited as one possible cause for CFS. Preliminary studies were performed to investigate cellular bioenergetic abnormalities in CFS patients. A series of assays were conducted using peripheral blood mononuclear cells (PBMCs) from CFS patients and healthy controls. These experiments investigated cellular patterns in oxidative phosphorylation (OXPHOS) and glycolysis. Results showed consistently lower measures of OXPHOS parameters in PBMCs taken from CFS patients compared with healthy controls. Seven key parameters of OXPHOS were calculated: basal respiration, ATP production, proton leak, maximal respiration, reserve capacity, non-mitochondrial respiration, and coupling efficiency. While many of the parameters differed between the CFS and control cohorts, maximal respiration was determined to be the key parameter in mitochondrial function to differ between CFS and control PBMCs due to the consistency of its impairment in CFS patients found throughout the study (p≤0.003). The lower maximal respiration in CFS PBMCs suggests that when the cells experience physiological stress they are less able to elevate their respiration rate to compensate for the increase in stress and are unable to fulfil cellular energy demands. The metabolic differences discovered highlight the inability of CFS patient PBMCs to fulfil cellular energetic demands both under basal conditions and when mitochondria are stressed during periods of high metabolic demand.


Exercise – induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects | Scientific Reports


David Tuller and the (s)PACE cake eaters | Anil van der Zee


MEA Summary Review: Red blood cells in ME/CFS demonstrate reduced ability to change shape | 04 December 2018 | ME Association


MEA Summary Review: Metabolites from ME/CFS implicate 'Redox' imbalance | 02 February 2019 | ME Association


Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | ImmunoHorizons


Narrowed Small Blood Vessels Linked to Fatigue in ME/CFS - Health Rising


Frontiers | Characterization of Post-exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | Neurology


Hypothesis Predicts Major Failure Point in Chronic Fatigue Syndrome (ME/CFS) - Health Rising


ME/CFS: What Psychiatrists need to know - Doctors with M.E.


The Tangled Story of ME/CFS - Dialogues


Understanding myalgic encephalomyelitis | Science



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